Occupation:Brain Cancer Warrior by day, in bed by 7:00pm
Pictured above: This is what happens when you let a cancerous concrete jungle inhabitant loose when the weather warms up to a gorgeous 55 and sunny. I dusted off my sneakers, took off on foot, alone, Spotify Radio Folk Station set, and headed toward Queens. Before turning around to head back home to Brooklyn I soaked in the east river skyline views which at this point NikePlus calculated I had walked over 1.5 miles. Needless to say, this hour I spent walking over 3 miles total was the most rigorous exercise I got since possibly before surgery. The entire weekend was gorgeous and both days I managed to wake up headache free. Coincidence, I think not? I can only hope the pattern continues.
Hold up… Not Cool.
Welp, as I suspected those spring days are not here to stay just yet and we must make the most of them if they do ever come back. For my fellow jungle creatures who can sympathize, this is what I feel we look like struggling to reach Spring…. :(
How about a post that has nothing to do with my cancer diagnosis or the fact that I have 8 months of chemotherapy under my belt. If you follow me on Instagram @carlybklyn some of these pics will look familiar so I apologize for the repetition. Enjoy :)
I was so excited to learn that my older sister and I will be Co-maids-of-honor at our little sister’s wedding next year and stoked to have her best friend Catie complete the bridal party.
Here are Ruben and I last week at a valentines flea market in our neighborhood. Photo booth was free and no creepy props were provided which was a relief since I always feel obligated to use them but being a germaphobe I think they’re disgusting and prefer not to.
Then today, we came across these crates on the street outside a thrift shop in Greenpoint from my hometown Kingston, New York. Not sure we need the clutter but these would look fab in our apartment.
For Valentines day, although I knew way before hand, Ruben bought us tickets to see John Legend at the Brooklyn Academy of Music in Fort Greene! I am super excited for this. I don’t think he knows what he got himself into, I have a HUGE crush on John Legend. But if he was smart he would have bought us front row seats for a better chance at sitting next to John Legend’s wife, Christine Teigen. Tickets: check. Copy of Sports Illustrated 2014 Swimsuit Addition: check. Sharpie: check.
Ok just one picture related to my diagnosis. I took this selfie the other day and sent it to my mom and sisters a few hours before my first visit with the psychiatrist. I texted them with the caption “if you don’t hear from me this afternoon I can’t text because I’m probably in a straight jacket.” I had been home sick from side effects due to chemotherapy most of the week and clearly had a bad case of bed head from all the laying down I was doing.
That’s all for today. This week I earned my 100th tumblr follower, yahoo! Thank you all for keeping up and keep spreading the word!
BPI: Your Brain Performance Index (BPI) is a measure of cognitive performance, based on the combined results of your best games in each Brain Area.
I’m sure most of you have seen the TV commercials by now and if you’re like me, you’re wondering what this Lumosity app is really all about and what benefits it could potentially have on a brain that needs some fine tuning.
So, I downloaded the free version which is what I’m working with for now. The app sends a daily alert to my iPad every morning to be sure I don’t forget to complete my tasks. After you finish your training the app calculates an up to date BPI and brakes it down into each category.
I downloaded this app only about 2 months ago so throughout this time I would take screen shots of my daily results to make sure I was progressing by comparing with an earlier graph. Above are 6 samples from these results reading left to right. The first one shows a BPI of 480 which was most likely week one; so this is my baseline. I would snap about one a week. I’m at about 587 right now. As you can see, my BPI has never gone down since commencing this difficult task (except for that one time)
Considering I actually forgot to log into the app to play on several occasions, my memory only staggered a little which I thought was impressive. The flexibility category makes me giggle because I have NO idea what the hell that could possibly measure. I know you’re all picturing some crazy lady in her pajamas with a sweat band doing some funky aerobics exercise. Well it’s not true, there is no physical activity so your guess is a good as mine.
The app also does not calculate any psychological measures which I think would be crucial for someone like myself who is seeking overall mental stability. For those who know me best know that the last couple of months my psyche and mood swings have been unpredictable and sometimes alarming. So I decided to create my own chart to show you how my mood has changed throughout the trial of this drug. If you remember I started in July, mood was great, remained steady, then in January it plummeted. Now I’m not a raging bitch all the time, it’s just when I’m not feeling well. I’ve found some ways to control my rage. I don’t go to the doctors alone anymore, my Mom must come along to referee. Visitors make me feel so much better (enter at your own risk). There are others I just can’t think of any right now but I’m working on it. Whatever, it’s totally seasonal. This Jungle is miserable!
Lumosity. I challenge you. Send me your BPIs :)
Young female adult cancer patient hiring part-time care-taker to fulfill duties of boyfriend (not those, gross) on work days when she is not feeling well enough to go into her office.
Hours vary, dependent upon how “busy” her boyfriend is. Typically you’d arrive around 10am and must leave before he returns from work, anytime between the hours of 4 and 5pm. Light cleaning and cooking/microwaving may be required but most importantly your company is desired. Fetching Starbucks tea and snacks as needed or other errands may be expected.
Must have reliable transportation to and from Greenpoint, Brooklyn. The G train does NOT count;
Must love the 4th hour of the Today Show with Hoda and Kathie Lee, The Price is Right, Ellen Degeneres, and certain game shows too embarrassing to list;
Patient open to new shows but absolutely nothing on Bravo, E!, etc;
Cell phone use restricted, emergencies only;
Guests allowed upon approval only;
Nap time is taken seriously, quiet please;
Medical experience is highly recommended;
Be mindful of when medication is needed;
Must take patient on walks around the neighborhood unless she doesn’t feel like it;
Oh yea, must be caring, funny, chill, loving, compationtate. Basically Patient wants her Momma.
One complimentary Starbucks item per day, free wi-fi access, and unlimited Keurig pods.
Please contact cancerinthejungle to apply. Serious inquiries only.
As 2013 comes to an end, I think it’s safe to say that numerous concrete jungle inhabitants would agree with me that this was a year to forget. These people may include Giants, Jets, Yankees, Mets, Knicks and Nets fans, Anthony Weiner, Spider-Man, Joe Lhota, and the dolphin who found it’s way to the Gowanus Canal (R.I.P.) However, looking back there were some memorable moments that I will treasure and am happy to share. These include but are not limited to:
1- Attending the marriage ceremonies of two of my closest girlfriends Jill and Christy
2- The birth of my adorable twin cousins Hunter and Vincent
3- Witnessing my future brother-in-law propose to my little sister Alley
4- Moving in with my soul mate (leaving my best friend Leah was not a highlight!)
5- Spending a week on the beach post-op with my mom and sisters
6- Discovering Yogurt Land
7- Sitting behind the Phillies dugout; thanks Ryan Howard for the signed ball!
8- Still debating on whether that 60 minute ass massage last week from a dude my age was memorable or incredibly inappropriate
9- Graduating from DIY laundry to drop-off service. Totally worth the money!
10- Meeting my new hair stylist who works magic on a fragile noggin
11- Being reminded I have the BEST support system EVER
On that note, here are some pics of the year to forget to be sure I don’t forget the moments that will last forever. Happy new year everyone!
-Two days ago I gave someone the wrong address when they asked me where my parents lived; which also happens to be the place I lived for 24 years. I didn’t realize until it was too late and he had already placed his order online to be shipped. Oopsies.
-The other day Ruben and I went to brunch at a brand new restaurant that opened up down the street. Cool place, The Brew Inn. Naturally, I had to use the restroom before we left so I headed toward the back where I noticed a door patrons had been coming in and out of, must be the bathroom. I opened the door and the first thing I saw was the sink so I knew I was in the right place. I shut the door behind me to lock it and began panicking. I could NOT find a lock. Wtf?? How could they have a restroom with no lock?! Seriously what’s going on here. After a good 45 seconds of weighing my options (in no particular order)… A) take a risk and pray no one walks in B) ask the staff “what the hell?” C) pee my pants D) hold it, I then start turning around in circles to see what I’m working with. I must have done 7 circles standing in place looking for the toilet until finally realizing there were two stalls to my left. This was just the wash station. Needless to say when I headed back to my table I was giggling to myself.
-I was feeling ok and decided to take a break the other day from laying down watching TV (believe me I’d rather be working ) and headed to Starbucks to grab tea and a seat. Looking like the important business lady I am, I had my iPhone headphones plugged into my phone listening to Spotify. I had a good window seat upfront, it was a packed house. I was doing crosswords on my iPad while listening to music and then remembered there was a YouTube video I wanted to look up. So I paused my music on the iPhone and started playing the video on my iPad. The sound was faint so I pumped up the iPad volume. That’s weird, why am I not hearing this video. Two minutes later: Oh that’s because my headphones are plugged into my iphone and I’m trying to watch a video on my iPad dummy. Once I convinced myself I was only going semi-crazy and it was totally ok to play youtube videos out loud at a crowded cafe I leaned toward the couple next to me to apologize but they must have already written me off as a psycho and totally ignored me. Geesh.
All I have to say is thank god I’m not in charge of cooking for Christmas.
A complete stranger made this card for me. How incredible? This mystery person found my blog on tumblr and sent me a message last week sharing his/her work and asked if I wanted a homemade card. I was reluctant to accept at first but after returning from my hospital stay this week and veering off the path I had been cruising along since starting treatment in July I thought the timing was appropriate to receive an uplifting gift from a stranger. It’s not just a gift, it’s artwork that expresses creativity, compassion, and courage. Look at the detail, specifically the skyline at the bottom. I love how he used photos from my blog to create a collage and even though I’m not necessarily looking my best in some of these, I’m being thanked for bringing beauty to the jungle, my home.
Amazing. Thank you so much letterforthebetter.tumblr.com for creating this letter for me and bringing smiles to all the other recipients!